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Monday, December 19, 2011

Some Support Groups for RSD/CRPS, Listed by State

Alabama
There are currently no support groups in Alabama.
Check surrounding states for support groups: FloridaGeorgiaMississippi,Tennessee
Find an online support group here.

Alaska
There are currently no support groups in Alaska.
Find an online support group here.

Arizona

North Phoenix
New Group
Contact: Leslie Glassman, Tel: 623.247.3746, les-mike@cox.net

Phoenix
RSD Care and Share Support Group of Phoenix
Meets 3rd Saturday, 1:00 pm
St. Joseph's Medical Center, 3rd Ave and Thomas, Phoenix
Contact: Margie St. Pierre, Tel: 602.843.2412, mjstpierre1@yahoo.com

Tucson
RSD Care and Share Support Group of Tucson
Meets 2nd Saturday, 3:00 pm
Masonic Lodge, 3959 East Mabel (near Alvernon & Speedway)
Contact: Rhonda Smith, PO Box 1677, Cortaro, AZ 85652
Tel: 520.579.5511, tucsonrsd@yahoo.comwww.tucsonrsd.blogspot.com

Yuma
James Newland would like to start a face-to-face support group in Yuma. If interested in attending, please e-mail James.
Contact: James Newland, jknewland@msn.com

Arkansas

Batesville
New Group
Contact: Shelia Hall, sheliaann@rocketmail.com
Little Rock
New group
Contact:Debbie, brink@ipa.net
Tel: 501-851-3807

California

Cupertino
New Group
Contact: Brenda Eldridge, brendaeldridge@comcast.net (put CRPS in subject line)

Highland

Meets second Thursday of each month
Contact: Patti Rosario, pattierosario@sbcglobal.net (Rsd support Group - in subject line) 

You can also visit their website here

Lancaster
Meets Wednesdays, 4:00 pm to 7:00 pm
Contact: Mary, Tel: 661.723.5713

Pasadena
Design for Living
Meets 4th Saturday, 4:00 pm to 5:30 pm
Lake Avenue Church, 393 N. Lake Ave, Rm 202, FLC (Call for directions)
Contact: Dana Gambill, Tel: 626.755.0105, designforliving@earthlink.net

Paso Robles
Mail and Phone support only
Contact: Kathy Barnett, 383 Quarterhorse Lane, Paso Robles, CA 93446
Tel: 805.238.5044

Roseville
Roseville RSD Support Group for Veterans

San Francisco/Bay Area
New Group
Contact: Tom, Tel: 650.296.3221, tomcrps@gmail.com

Santa Rosa
New Group
Contact: Allegra, asativa43@gmail.com
  
Colorado

Englewood
Rocky Mountain CRPS/RSD
  
Connecticut

Branford
Barbara is facilitating a chronic pain support group at the Guilford Women & Family Life Center (Men welcome)
Alternate Sundays 4:00 to 5:00 pm
Guilford's Family and Life Center (Tel: 203.458.6699)
96 Fair Street, Guilford CT
Contact: Barbara, Tel: 203.481.7398, s21@snet.net
Barbara cannot return toll calls.

Bridgeport
Phone Support Only
Contact: Minkie, Tel: 203.373.7767

Brookfield/Danbury
CT Pain Foundation, Inc.
Meets weekly
Contact: Paul Gileno, 115B Commerce Drive, Brookfield, CT 06484, Tel: 877.271.1209, Tel: 203.775.6331, info@ctpainfoundation.com,www.ctpainfoundation.com

Norwich
American Chronic Pain Association #664
Contact: Rita Ammons, 1 Pacemaker Ave., Norwich, CT 06360, Tel: 860.822.1082, ritaammons@hotmail.com
  
Delaware

State-wide
Phone Support Only
Contact: Gerry McLaughlin, Tel: 302.504.0663
  
District of Columbia
There are currently no support groups in the District of Columbia.
Check surrounding states for support groups: DelawareMarylandVirginia
Find an online support group here.
  
Florida

Coral Springs
RSDExtremity
Meets Last Thursday, 6:30 pm to 7:30 pm
3100 Coral Hills Drive, 1st Floor, Conference Room A & B
Adjacent to Coral Springs Medical Center
(Call 954.344.3344 for directions)
Contact: Susan or Michelle, RSDExtremity@yahoo.com

Daytona
Northeast Coast of Florida RSD Support Group
Contact: Linda Cohn, Lindsay Heffron, or Janet Tedder, Tel: 386.673.0871,leeorlinda@bellsouth.net

Jacksonville
North Florida RSD|CRPS Support Group
E-mail Support Only
Contact: Tanya Kee, nfrsdsupport@aol.com

Lake City
New Group
Contact: Jessica Velez, Tel: 386.344.5333, jvelezrsdsg@bellsouth.net

Lakeland
Phone and E-mail Support Only
Contact: Karen McManus, Tel: 863.838.0223, polkrsdgroup@tampabay.rr.com

Miami Lakes
New Group
Contact: Maggie, Tel: 305.502.9595, imaginemiami@yahoo.com

Orlando
Orlando RSDS/CRPS Support
If you live in the Greater Orlando are and are a CRPS patient and/or are a loved one, caregiver, friend of a patient, and would like to be involved with our group, or would just like to come on by and talk with us, drop us a line with your contact information.
Contact: Jason Bingham, Tel: 407.234.4243,orlando.rsds.crps.support@gmail.com

Palmetto
New Group
Contact: Lana Baus, Tel: 941.592.1968

Panama City
Contact: Carmen E. Everhart, 3919 Becora Ct., Panama City, FL 32405,
Tel: 850.265.3463, cever15741@yahoo.com

Pinellas County
New Group. RSD Support Group.
The group meets the second Saturday of each month at 10:30 am at the Pinellas Park Library.

Pinellas Park, Florida
Contact: Nancy, Tel:727-546-9319

Vero Beach
RSD Support Group of the Treasure Coast
Phone Support Only
Contact: Liz Radloff, Tel: 772.778.2777 (10:00 am to 10:00 pm),Lizrsd1@comcast.net

Winter Haven
Contact: Barbara, rsdcareintl@aol.com
  
Georgia

Atlanta
New Group
Contact: Lucille, Tel: 770.252.4665, a80wife@aol.com

Rome
New Group
Contact: Felechia, Tel: 678.685.4429, feliceshreewil2@msn.com

Hawaii
Kailua-Kona
RSDS|CRPS Association of Hawaii RSDSA
Contact: Tina Mohr, LMT, 73-4787 Halolani St. Kailua-Kona, HI 96740,
Cell: 808.960.0918, Fax: 808.325.0370, tina@protourhawaii.com

Idaho
There are currently no support groups in Idaho.
Check surrounding states for support groups: MontanaNevadaOregonUtah,WashingtonWyoming
Find an online support group here.

Illinois

Elk Grove Village
Illinois RSDS Association
Meets 2nd Sunday, 2:00 pm to 4:00 pm
Conference Rooms 1 & 2, Alexian Brothers Hospital, 800 Biesterfield Rd.
Contact: Edwina Schaeffer, Tel: 630.665.0717, edwinaschaeffer@sbcglobal.netor Tim Groark, Tel: 773.582.8051, frogy3@msn.com

Hinsdale
Meets 3rd Sunday, 2:00 pm to 4:00 pm
Lincoln Room, Adventist Hinsdale Hospital, 120 Oak Street, Hinsdale, IL 60521
Contact: Edwina Schaeffer, Tel: 630.665.0717, edwinaschaeffer@sbcglogal.netor Tim Groark, Tel: 773.582.8051, frogy3@msn.com

Hinsdale
Meeting for Children with RSD
Meets 1st Sunday, 2:00 pm to 4:00 pm
Adventist Hinsdale Hospital, 120 Oak Street, Hinsdale, IL 60521
Contact: Edwina Schaeffer, Tel: 630.665.0717, edwinaschaeffer@sbcglogal.netor Tim Groark, Tel: 773.582.8051, frogy3@msn.com

Rockford
Meets 2nd Monday of month, 10:00 am to 11:30 am
Swedish American Hospital, 4th Floor, Rockford, Illinois
Contact: Beth Moore, Tel: 815.247.8885, bethmoore35@hotmail.com

Round Lake
Pain Specialists of Greater Chicago
Contact: Joy Thornborough, 604 Nippersink Ave, Round Lake 60073
Tel: 847.201.8957, joy2u4ever@yahoo.comwww.painchicago.com
  
Indiana

Evansville
New Group
Contact: John Chivalier, Jr., Tel: 812.303.5788, j_chivalierjr@yahoo.com

Fort Wayne
Meetings and phone support. Call for meeting information.
Contact: Mara, Tel: 800.728.2425, askmara@gmail.com
  
Iowa

Decorah
St. Benedict's Parish Offices. Please Call to Register.
Contact: Eva, Tel: 563.380.6672, or Carol, Tel: 563.380.7888

Kansas

KC Metro Area Entire Area
KC RSD/CRPS Support Group
Online, Phone, and Group Meetings.
Meets 1st and 3rd Tuesdays 7-9 PM 
Contact: Lisa Coan, Tel:816.326.7111 (10:00 am to 10:00 pm CST),lisakcoan@yahoo.com

Kentucky

Burlington
Northern Kentucky RSD Chapter
Contact: Alyce F. Rowland, Northen Kentucky RSD Chapter, PO Box 667, Burlington, KY 41005; Tel: 859-586-6180 (If no answer, call 859-743-8204);lifewrsd@aol.com

Deane
Contact: Desta Slone, PO Box 108, Deane KY 41812
Tel: 606.447.2393, rsds@hotmail.com

Leitchfield
South Central KY RSD Support Group
Meets 1st Tuesday, 1:00 pm CT
Eriksen Chiropractic Center
508 Wm Thomason Bwy
Leitchfield, KY 42754
Contact: Carolyn Clemons, 345 Hopewell Rd., Caneyville, KY 42721
Tel: 270.879.4023, cpc345@windstream.net

Louisville
Contact: Carol Dever, Tel: 502.314.2049, edever34@aol.com

Louisiana

Kenner
24/7 Phone and E-mail Support
Contact: Kim, Tel: 504.712.6928, kbellawithrsd@yahoo.com

Monroe
New Group
Contact: Debbie, Tel: 318.387.9645, ducotedm@bellsouth.net

Shreveport
New Group
Contact: Jerry Pond, Tel: 318.222.5573, jpond@bellsouth.net

Sunset
New Group
Available via telephone and and to chat monthly
Contact: Lisa Begnaud, Cell: 337.290.5818

Maine

Harrison
American RSDHope
Contact: Keith Orsini, 5 Stonehedge Way, Harrison, ME 04040-9708,
Tel: 207.583.4589, www.rsdhope.org

Southern Maine
Chronic Pain Support Group
Meets 1st and 3rd Thursdays, 6:00 pm to 7:30 pm
The Pines, 10 Manor St., Old Orchard Beach, ME
Contact: Evelyn, Tel: 207.937.5020, or Jane, Tel: 207.934.4189,supportgroupinfo@gwi.netwww.painsupportgroup.org

Maryland

Baltimore
E-mail support only
Contact: Nancy Carp, imnancee@verizon.net
Warton
Contact: Nancy Ward, Tel: 443.480.9186, snjwards@yahoo.com

State-wide
RSDS Support Group of Southern Maryland Hospital Ctr
Meetings (call for dates)
Contact: Tony Powell, Tel: 301.645.0786, apowell301@aol.com
  
Massachusetts

Abington
Support Group for Children in Pain
For children 6-18 years of age and their families
Meets 1st Wednesday
United Church of Christ, Abington (on Route 18)
Contact: Judy, Tel: 781.871.8803 (9:00 am to 5:00 pm),hopenfaith4ever@aol.com

Arlington
Arlington Chapter of the American Chronic Pain Association
Meetings are free and open to anyone living with chronic pain.
Meets 2nd Friday, 11:00 am to 12:30 pm
Arlington Robbins (main) Library, 700 Mass Ave, In the ground floor Community Room
Contact: Cindy Steinberg, leader@arlingtonacpa.org

Mansfield
Phone support (Call between 11:00 am and 5:00 pm)
Contact: Lisa Shea, Tel: 508.339.6064, lisanashshea@yahoo.com

Weymouth
Meets 4th Tuesday, 5:00 to 7:00 pm
South Shore Hospital, Center 2 Classroom
Contact:Carol Sansone, Tel: 781.340.8352

Worcester
Phone support only
Contact: Mary La Bree, Tel: 508.595.0207
  
Michigan

Ann Arbor Area
RSD in Motion: Ann Arbor Area Support Group for Reflex Sympathetic Dystrophy and Complex Regional Pain Syndrome
Babysitting will be available during every support group meeting for the next few months! A sitter will be available, free of charge, please contact Jordan if you're interested with what night, how many, and their ages. A babysitter will not be at the group if no one contacts me with this need.
Contact: Jordan Keen, a2rsdcrps@gmail.com

Detroit
Southeastern Michigan CRPS
Meets last Friday, 6:00 pm to 8:00 pm
People Community Church, 8601 Woodward Ave
Contact: Jannie White, Tel: 313.861.6791, (1:00 pm to 6:00 pm),rsddetsupportgroup@sbcglobal.net

Grand Rapids
RSDS Support Group of Grand Rapids
Contact: Sherry and Cliff Mulder, 1259 Diamond NE, Grand Rapids, MI 49505,
Tel: 616.364.4014
Jean Arp, 2446 Eden, SW, Wyoming, MI 49509, Tel: 616. 534.9281

Lake Superior
Ron is starting a new group and would love to connect with others nearby.
Contact: Ron Halsey, Tel: 906.273.0527, mari.maverick@hotmail.com

Parchment
Parchment Community Library, 401 S Riverview Dr, Parchment, MI 49004 
Library Tel: 269.343.7747
Contact: Colleen, Tel: 269.381.2283, colleen.westra@chartermi.net

Republic
Hands Helping Hands
Mail or Phone Support ONLY
Contact: Patti Truckey, PO Box 680, Republic MI 49879, Tel: 906.376.8464,painiacs@yahoo.com

Sanford
RSD Group of Midland
Meets Thursdays, 9:00 am
Lanny's Restaurant
Contact: Paul and Marge Allen, 2826 W. Olsen Rd., Sanford, MI 48657-9630
Tel: 989.835.1766, Cocoapaul70@wmconnect.com

Minnesota

Minneapolis/St. Paul
MN RSDS/CRPS Coalition
Contact: Bonnie Scherer, 3904 Green Heights Trail SW, Prior Lake, MN 55372
Tel: 952.447.4930, Cell: 952-457-7586, rsdsmn@aol.comwww.rsdsmn.org

Minnesota North Metro
Minnesota RSD Support Group
Meets 2nd Saturday, 10:00 am to Noon
Elk River Public Library, 13020 Orono Parkway, Elk River, MN 55330
Open to Everyone
Contact: Kate Healy, Tel: 763.441.1641, Kate@rsdsmn.orgrsdsmn@aol.com,www.rsdsmn.org

Twin Cities South
Minnesota RSD Support Group
Meets 4th Saturday, 10:00 am to noon
Savage Public Library, 13090 Alabama Ave. S, Savage, MN
Open to people with CRPS and their caregivers
Contact: Bonnie Scherer, Tel: 952.447.4930, Tel: 952.770.1770, Cell: 952.457.7586,
rsdsmn@aol.comwww.rsdsmn.org

Mississippi

Brandon
Michele is starting a new support group. If interested in attending or helping, please e-mail her.
Contact: Michele, rsdcajunbabe@yahoo.com

South Haven
Midsouth RSDS Support Group
Phone Support
Contact: Linda Adams, 1096 W.E. Ross Parkway West, South Haven, MS 38671,
Tel: 901 473 9559

Missouri

Brandon
New Group
Contact: Michele Breaux-Poff, Tel: 601.918.5498, rsdcajunbabe@yahoo.com

KC Metro Area
Entire Area
KC RSD/CRPS Support Group
Online, Phone, and Group Meetings.
Meets 1st and 3rd Tuesdays 7-9 PM 
Contact: Lisa Coan, Tel: 816-326-7111 (10:00 am to 10:00 pm CST),lisakcoan@yahoo.com

St. Louis
St. Louis Chronic Pain Support Group
We offer peer to peer and guest speaker meetings on the 1st & 3rd Tuesdays.
Contact: Felisha Starkey, Tel: 314.304.4921, info@stlpainsupport.com or
fkstarkey@gmail.comwww.stlpainsupport.com

Montana
There are currently no support groups in Montana.
Check surrounding states for support groups: IdahoNorth DakotaSouth DakotaWyoming
Find an online support group here.

Nebraska

Omaha
Mother of a young daughter with CRPS would like to help others successfully navigate the school & healthcare systems
Contact: Jackie Scott, Tel: 402.213.8667, hrmanager@libertytaxne.com

Fremont
Fremont RSD Awareness
Meets 3rd Tuesday, 7:00 pm
Connie's House
If no one is home to answer, please leave a message.
Contact: Connie, Tel: 402.753.3054, Cell: 402.708.1694

Nevada

Carson City
Chronic Pain Anonymous 12-Step Meeting
Chronic Pain Anonymous is a 12-Step fellowship of men and women who share their experience, strength and hope with each other so that they may solve their common problem and to help others recover from chronic pain and chronic illness. The only requirement for membership in CPA is a desire to recover from the emotional, physical, and spiritual debilitation of chronic pain and chronic illness and a willingness to help others to do the same.
Saturdays, 12:00 pm
BHS Carson Tahoe Regional Health Care, Building B
W Williams St at N Minnesota Rd
Carson City, NV 89702
Contact: Chuckaaforeme@gmail.com

New Hampshire

Manchester
New Group
Contact: Cora, Tel: 603.703.7152, coraouellette@comcast.net

Spofford
New Group
Contact: Debbie Fisher, Tel: 603.363.4569, dafisher@myfairpoint.net

State-wide
New Hampshire RSD Coalition
Phone support only
Contact: Doreen McCullough, Tel: 603.656.9044, rav29@comcast.net

New Jersey

Atlantic County
South Jersey Reflex Sympathetic Dystrophy Group
Atlantic County Library
Anyone with chronic pain is welcome to attend. I am also looking for volunteers. If you would like to help with the group, or for more information, please contact Meloney.
Contact: Meloney Hulse, Tel: 609.625.4677, rsdangel15@aol.com

Barrington
Contact: Christine, Craftychris71@aol.com

Berlin
E-mail support only
Contact: Linda Sobolewski, 79 Roosevelt Blvd., Berlin, NJ 08009,rinebird@juno.com

Camden County
Meets Weekly
The Starting Point, 250 Highland Ave, Suite C, Westmont, NJ
Tel: 856.869.5483, Tel: 856.854.3155
Contact: Carylanne Tracy, Tel: 856.869.5483, energycat9@yahoo.com

Hoboken
New Group. Contact Kurt for details.
In the Hudson County / NYC area (One 7-minute subway ride from Manhattan, and there are ferries and cabs available)
Contact: Kurt Bond, Tel: 973.568.8078, wipmm@optonline.net

Mt. Holly
RSD and Chronic Pain Support Group
Meets 3rd Wednesday, 7:00 pm
Virtua Hospital
Contact: Kathy Henson, Tel: 609.268.15650

Mt. Laurel
RSD & Chronic Pain Support Group of Mt. Laurel
Meets 4th Tuesday, 7:00 pm
YMCA of Burlington County, 59 Centerton Rd., Mt. Laurel
Contact: Lisa Anne Vasey, Chairman, Tel: 609.877.0213, lisav1@live.com

Paterson
RSD and You Group of Northern NJ, Inc.
Meets 4th Tuesday, 7:00 pm
St. Joseph's Hospital, Barclay Room, 703 Main St, Paterson
Contact: Jaclyn Drake, Tel: 201.704.0963, jaci81@optonline.net

Somerville
Living with RSDS, Inc.
Meets 1st Tuesday, 7:00 pm to 9:00 pm
Somerset Medical Center
The meeting is open to anyone with RSDS, family, friends, professionals, and others with chronic pain.
Contact: Sharon Weiner, 421 Courtyard Drive, Hillsborough, NJ 08844
Tel: 908.575.RSDS, Cell: 732.718.6978, slweiner@hotmail.com,livingwithrsds.com

Southern Ocean County
New Group
Robin Weiss is interested in starting an ongoing chronic pain support group. Please contact if interested.
Contact: Robin Weiss, Tel: 609.978.7322, sedona.solice@yahoo.com

Southern New Jersey

Vernon
Contact: Tracey Vicedomini, Tel: 973.823.0936, tavcjv@emqarbmail.com
  
New Mexico

Albuquerque and Las Cruces
Phone Support
Contact: Anna Montoya, RN, Tel: 915.490.0084, Tel: 505.503.1967,mother1959@gmail.com

Albuquerque
Phone support and quarterly meetings
Contact: Daniel Sampson, Tel: 505.315.1639, eaglemaster89@hotmail.com

Los Alamos
Contact: Hazel Devreis, 119 Sherwood Blvd., Los Alamos, NM 87544,
Tel: 505.672.4112

Santa Fe
Contact: Nancy Boal, 59 Sunlit Dr, Santa Fe, NM 87505, Tel: 505.983.3036
  
New York

Bellmore
CRPS (RSD) Association of NY State
Contact: Marsha Rothstein-Laino, RN, Tel: 516.221.7220,MarshaTheNurse@aol.com

Binghampton
Chronic Support Group
Meets 2nd and 4th Tuesday, 10:00 am to 11:30 am
Pain Center, 200 Front St, Vestal, NY
Contact: Corky Mott, Tel: 607.655.2167, dancork@echoes.net

Buffalo
RSD/CRPS Support Group of Buffalo & WNY
Meets 4th Monday, 7:00 pm, and 2nd Thursday, 10:00 am
St. Paul's Lutheran Church, 4007 Main St. (1.5 blocks east of Eggert Rd), Eggertsville, NY
Contact: Lynda, Tel: 716.896.0771, rosieo335@yahoo.com

Claverack
New Group
Contact: Julie, Tel: 518.851.2265, Magic41julie@yahoo.com

Manhattan
All meetings will be held on the first week of the month.
200 E 81st, Apt 8B, New York, NY, 10028 (b/w 2nd and 3rd Ave)
Please RSVP beforehand so that we have the proper accomodations
Contact: Laura, laurakbelt@gmail.com

Middletown
Meets 1st and 3rd Thursday
Contact: Susan Shafer, Tel: 845.412.5356, eshafer@hvc.rr.com
PO Box 595, Otisville, NY 10963

St. Lawrence Valley
St. Lawrence Valley RSD Support Group
Phone Support only
Contact: Joanne M. Thompson, RN, Tel: 315.394.9744,jthomsom@twcny.rr.com

Suffolk County
Meets 1st Friday, 12:00 pm to 1:30 pm
Contact: Debbie Huberman, Tel: 631.563.4856

Syracuse
New Group
Contact: Belinda, Tel: 315.668.1608, bsomers@twcny.rr.com

North Carolina

Hillsborough
Tarheel Telephone Support
Phone and mail support
Contact: Beth Robinson, 4100 New Sharon Church Rd., Hillsborough, NC 27278
Tel: 919.643.0383, tarheelgal1@embarqmail.com
Raleigh
Triangle Pain Support

This group is just beginning and the first meeting will be held on Wednesday February 9, 2011 at 7pm
Contact:Stacy Josephson, Tel: 919-559-0240; TrianglePS@Yahoo.com
A website www.TrianglePainSupport.org is being developed,

Salisbury
Meets 2nd Monday, 7:00 pm
Rowan Regional Medical Center
Contact: Donna, Tel: 704.637.1021
Shiloh
Camden County
Support will be available via E-mail, Phone & Skype initially, no face-to-face meetings will be planned or scheduled until after the holiday season.

Contact: Samantha Adcock, Shiloh (Camden County) NC Tel: (252) 336-4462
E-mail:   nccrpsrsd@gmail.com
Skype: Samantha.M.Adcock
Website: https://sites.google.com/site/nccrpsrsda/ (under development)

North Dakota

Grand Forks
New Group
Contact: Shana, Tel: 701.741.0073, Pray4acure@gmail.com

Ohio

Cincinnati
RSD Painfree
Meets 3rd Wednesday, 7:00 pm to 8:30 pm
Pleasant Ridge Recreation Center, The Blue Room, 5915 Ridge Rd., Cincinnati, Ohio 45213
Please show some love and support and let's make this happen for southwest Ohio. E-mail us if you would be interested in attending this group.
Contact: Cyndi and Patrick Ellis, RSD180painfree@gmail.com

Cuyahoga Falls
Meets 1st and 3rd Tuesdays
Auditorium #1, Falls General Hospital, 1900 23rd Street, Cuyahoga Falls, OH
ContactCircclerk@core.com

Cleveland
Phone and mail support
Contact: Georgette Bell, Tel: 216.481.2802
17909 Rosecliffe Rd., Cleveland, OH 44119 
Rich Forentball, 17904 Brazil Rd., Cleveland, OH 44119


Columbus
Meets 2nd Tuesday, 1:00 pm to 3:00 pm
Handicapped parking is available.
Contact: Susan Diamond, Tel: 614.805.4239, sediamond57@yahoo.com

Dayton and Vandalia
Phone support
Contact: Cindy Lowe, Tel: 937.898.1807

Lorain County
Online, e-mail, telephone, support group meetings, and snail mail support is offered.
Meets 4th Saturday. Location varies each month.
Contact: Jessica Jacobs, Tel: 440.822.7779, jljacobs1976@live.com

Milford
Phone Support 24/7
Contact: Mark Guy, 6041 Bridgehaven Dr, Milford, Ohio 45150, Tel: 513.831.1525, Fax: 513.831.1625, Cell: 513.659.3626, markguy@cinci.rr.com

Oxford
Meets 1st Thursday, 7:00 pm
Contact: Tammy Maxwell, Tel: 513.523.0169, maxwell1113@msn.com

Seville
New Support Group

Contact: Wendy High, PN, Tel: 330.931.9822, momoffatigue@yahoo.com

Warren/ Youngtown
Northeast RSD Support Organization
Meets 2nd and 4th Tuesday
Contact: Sandi Gabriele, 145 Terrace Drive, Youngstown, OH 44512-1630
Tel: 330.788.1186, rsdohio1@zoominternet.net

Warren
Mahoning Valley CRPS-RSDS Support Group
Meets 4th Tuesday, 6:30 pm to 8:00 pm
(Call for location or leave name and number we will call you right back.)
Contact: Cindi Horkey, Tel: 330.469.5735 or 330.979.2359,CindiHorkey626@aol.comcindihorkey@yahoo.com 
or
Carol Polan, Tel: 330.609.5028
       

State-wide
RSD of North West Ohio
Contact: Anita Boyer, rsdsupport@accesstoledo.com
  
Oklahoma

Oklahoma City
Oklahoma RSD/CRPS Support
Cimmaron Steak House. View website for more information.

Ponca City
Phone support only
Contact: Vonda Goad, Tel: 918.738.4193
  
Oregon

Grants Pass
Phone support
Contact: Nomeca Hartwell, Grants Pass, OR 97526, Tel: 541.474.3025

Portland
Phone support
Contact: Susanne Geraghty, 10719 S.W. 62nd Dr., Portland, OR 97219,
Tel: 503.293.0748

Portland
Phone support
Contact: Federico Aquino, Tel:503.890.7959, tainomaya@msn.com
  
Pennsylvania

Allentown
Northeastern PA RSDS Association
Meets Monthly
2845 Tilghman St., Allentown, PA 18104
Contact: Rae Lynne Tuffiash, 1040 Whitman St., Allentown, PA 18104
Tel: 610.395.0385, rsdmail@aol.com
Mrs. Daisy Bittner, 3638 E. Grant St., Slatington, PA 18080

Allentown-Lehigh Valley
Compassionate Friends Network for RSD/CRPS and Fibromyalgia
To join this free informational and educational network, please e-mail your first and last name, address, and telephone number. This is a confidential list which will only be used to contact you for meetings, events, and mailings.
If anyone would like to volunteer their time to be part of this network, please state in your e-mail.
Contact: Paula Thibault, lvrsd99@msn.com

Breinigsville
RSD/CRPS Support Network (by phone or will visit in your home)
Contact: Mrs. Peggy H. Grim, 8907 Breinig Run Cir., Breinigsville, PA 18031,
Tel: 610.530.7346, kellie1@ptd.netrsdsupportnetwork.wordpress.com

Canton
Lycoming County RSD Support Group
Meets monthly
Divine Providence Hospital (Private dining room basement)
Contact: A. J. Moyer, 2 Carlton St., Canton, PA 17724, Tel: 570.673.5548,ajmoyer@sosbbs.com

Chambersburg
Phone and Mail support only
Contact: Paula Brown, 174 Highland Rd., North Guilford Hills, Chambersburg, PA 17201, Tel: 717.267.0806

Delaware County
Kitty Cares
Meets monthly
Contact: Kitty, Tel: 610.872-5631

Erie
Northwestern PA RSDS Assn. Support Group
Meets 2nd Tuesday, 6:00 pm to 8:00 pm
June, July, August, September, October, Dinner in November
Hamot Heart Institute, Erie, PA
Contact: Tanya Schrader, 1316 West 22, Erie, PA 16502, Tel: 814.873.1564,northwesternrsdsa@yahoo.com

Honey Brook
Tri-County Chronic Pain Support Group
71 Wagon Way, Honey Brook, PA
Meets 1st and 3rd Tuesday, 11:00 am to 1:00 pm
Honey Brook Presbyterian Church, Rte. 322, Honey Brook, PA
Contact: Craig Collier, Tel: 610.286.5728, or Georgann Geedey, Tel: 610.273.3163

Indiana
Meets 3rd Thursday, 6:00 pm to 7:00 pm
Indiana Regional Medical Center, Indiana PA
Contact: Jamie Brown, Tel: 724.599.8341, zoiemae@msn.com, or Mrs. N.J. King (hospital contact), Tel: 724.357.8135

Johnstown
Support Group for Complex Regional Pain Syndrome
John P. Murtha Neuroscience and Pain Institute, 1450 Scalp Ave, Johnstown
For meeting times, please call Lori Murphy.
Contact: Vicki Walker, Tel: 814.410.3301, csiwalker@atlanticbb.net, or Lori Murphy, Tel: 814.269.5238

Lewisburg
Meets 1st Sunday, 3:00 pm
Evangelical Community Hospital
Contact: Jenny Dye, Tel: 570.649.5061, jb_dye@yahoo.com

Monongahela
Monongahela Valley Support Group of Southwestern PA
Meets 2nd Tuesday
November to March: 11:00 am | April to October: 6:00 pm to 8:00 pm
Monongahela Valley Hospital, Lombardi Conference/ Office Bldg.
Contact: Paulette Anderson, Tel: 724.929.9492, panderson_15438@yahoo.com

Philadelphia
8-week therapy group for people with chronic pain (fee charged)
Contact: Sarah M. Whitman, MD, 18 Hilltop Road, Philadelphia, PA 19118, Tel: 267.265.2082

Scranton/Wilkes-Barre
Scranton/Wilkes-Barre PA Support group
Meets 3rd Saturday, 1:00 pm, in a conference room adjacent to the public cafeteria
Mercy Hospital: 746 Jefferson Avenue, Scranton, Pennsylvania
Group does not meet January and February. March meeting depends on the weather.
New members, family, and friends welcome.
Contact: Suzanne O'Toole, Tel: 570.383.0578 (Call anytime),ScrantonRSDGroup@cs.com

Souderton
Montgomery County RSD Support Group
We will be starting meetings in late September-May.
Please contact for resources, support, and information.
Contact: Stephanie Maberry, Tel: 267.888.7559 (anytime),MontcoRSDsupport@verizon.net

State-wide
Pennsylvania RSD Coalition of Networks
Contact: Rae Lynne Tuffiash, 1040 Whitman St., Allentown, PA 18104,
Tel: 610.395.0385, rsdsmail@aol.com 
  
Rhode Island

Cumberland
RI RSD Foundation
Contact: Robert Hinton, 17 Lemieux Ave, Cumberland, RI 02864; Tel: 401.533.2142 (cell); therhodeislandrsdfoundation@cox.net;http://www.rirsdfoundation.webs.com

South Carolina

Greenville
South Carolina RSDS Association
Meets monthly
St. Francis Hospital Bernardine Center
Contact: Louise Plaster, PO Box 72, Simpsonville, SC 29681, Tel: 864.967.7965,
Cell: 864.350.1342, scrsda1@aol.comwww.scrsda.org
Robert Schwartz, MD, 317 Francis Dr. #350, Greenville, SC 29601, Tel: 864.235.1834

Sumter
New Group
Contact: Donna Parker, Tel: 803.481.7521

South Dakota

Aberdeen
Nina is interested in starting an in-person or online support group
Contact: Nina, profslota@yahoo.com

Statewide
E-mail and Telephone Support
  
Tennessee

Dayton
Contact: Ann Rector Fine, 2198 Maplesprings Rd, Dayton, TN 37321,myredprix@aol.com

Loudon
Reflex Sympathetic Dystrophy & Chronic Pain Support Group Of Eastern Tennessee
Meets 1st Wednesday, 6:00 pm
The Tellico Village Community Church, 130 Chota Center, Loudon, TN
Contact: Suzy Holcomb, Tel: 865.657.9052, AuntSuzyMouse@hotmail.com

Middle Tennessee
Middle Tennessee Support Group RSD
Looking to develop a local group for discussions and support, for RSD patients, and well spouses
Contact: Peter and Cherrie Albertson, patchythreads@aol.com

Nashville
New Group
Contact: Charlie Glover, Tel: 615.340.5008, glover19671@hotmail.com
  
Texas

Arlington
Home is Your Range: a group for people suffering with both CRPS & MS
Contact: Connie Hughes, Tel: 817.465.1585, rsdhelp@hotmail.com

Big Spring
New group
Contact: Krinkle and Debbie, Tel: 432.935.6278, krinkle102@suddenlink.net, or
Lucy, Tel: 432.264.1213, or Tina, Tel: 432.267.1883

Dallas
New group
Contact: Antoine Beachum, Tel: 214.714.5381

El Paso
Phone Support
Contact: Anna Montoya, RN, 7320 Duxbury Dr., El Paso, TX 79912, Tel: 915.833.3668,
Fax: 915.845.3011, mother59@excite.com

Houston
This group is just beginning and is seeking individuals to assist in coordination.
If interested, please contact Denise.
Contact: Denise, Tel: 936.336.0800, cleo1406@yahoo.com

Lake Jackson
Spinal Cord Stimulator and Chronic Pain Support Group
The meeting helps guide those who are considering getting an implant, or have an implant. The group's main focus is to support those living with chronic pain, with or without an implant.
Meets 2nd Monday, 11:00 am to 12:30 pm
The Medical Center of Plano, 15th & Coit Rd (Formal Dining Room in the cafeteria)
Contact: Dr. David Hanks, Tel: 972.596.5960
Pamela Terrell, Tel: 972.567.6406, deadwentgone2@verizon.net
Cindy McNeill, Tel: 972.384.0777, goseaweed@wmconnect.com
Vickie Thoma, Tel: 972.625.8140, rsdcrps@yahoo.com

San Antonio
New group
Contact: Dawn, Tel: 210.279.2019, hope4rsdntx@yahoo.com

Western Texas
Phone Support
Contact: Anna Montoya, RN, PO Box 203, Santa Teresa, NM 88008, Tel: 915.490.0084,
Tel: 505.503.1967, montoya59@comcast.netmother1959@hotmail.com
  
Utah
There are currently no support groups in Utah.
Check surrounding states for support groups: ArizonaColoradoIdahoNevada,New MexicoWyoming
Find an online support group here.
  
Vermont
There are currently no support groups in Vermont.
Check surrounding states for support groups: MassachusettsNew Hampshire,New York
Find an online support group here.
  
Virginia
Peninsula
Friends Living with RSD/CRPS

Contact Erin Dasher for more information on meeting dates and times
Tel: 757.634.9162, wmbg_rsdsupport@hotmail.com or erindasher@cox.net

Richmond
Virginia RSD Association
Summer: Twice monthly | Winter: Once monthly
Sheltering Arms Hospital
Contact: Virginia Porter, 9770 Osborne Landing, Richmond, VA 23231,
Tel: 804.795.5343, rsdinva@aol.com

Virginia Beach
Meets 3rd Tuesday, 11:00 am to 1:00 pm
Contact: Debbie Holt, Tel: 757.737.1379, debzhi@aol.com

Washington

Yakima
Hope 4 Pain
Phone Support
Contact: Carol, Tel: 509.823.4443, beaglebabe@charter.net

West Virginia

Clarksburg
New Group
Contact: Debbie, Tel: 304.641.8092

Wisconsin

Greenbay
RSDS Hope of Wisconsin, Inc., of Greenbay
Meets 2nd Monday
St. Vincents Hospital
Also meets in Saukville
Contact: Orvel Howard, Tel: 920.437.9197, rsdshope@sbcglobal.net

Greendale
Phone support only
Contact: Beverly Kitzke, Tel: 414.421.4536

Port Washington
New Group
Contact: Kathy Buck, Tel: 414-520-7287, kathybuck@wi.rr.com

Sheboygan
Sharon is looking to start a support group and to raise awareness.
Contact: Sharon Romenesko, share1965@charter.net

Wyoming
There are currently no support groups in Wyoming.
Check surrounding states for support groups: ColoradoIdahoMontana,NebraskaSouth DakotaUtah
Find an online support group here.

Source: RSDSA

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